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SILENT SUFFERERS:
 During the first phase of the UGAP pain, which typically last for 3 months to one year, most
of the patients do complain of pain and seek medical advice. Majority of the Physicians are in
dark about this condition. When the physician cannot make a definite diagnosis they keep on
ordering tests-sometimes very expensive ones, they request endoscopies, laparoscopies and
even surgeries. When pain progresses to a chronic phase patients tend to live lives of quiet
desperation and are essentially a "Silent Sufferers". Self esteem is impaired and the ability
to enjoy life is limited.
There are several reasons for this behavior. Some endure pain for a long time because they
are frustrated with the lack of knowledge Physicians have about this condition and their
reluctance to spend time, and labeling them as "Malingerers". Some have aversion about this
site of the body, for example genitals and rectum. Some have stigma-especially with women
when it comes to dyspareunia (painful sex). Some suffer for years without telling their
husband, they don't mention to their Gynecologist during their check-ups, thinking that
it is normal to have pain during intercourse.
Some are worried to mention to their Physicians, that the final diagnosis will be of some
serious and critical condition like cancer. Considering the above it is not surprising that these
patients feel isolated, they are recluse and live a life of a "Hermit". Our challenge is to get
them "out of closet" and help them.
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